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• 1. [Article] Collaboration Strategies in Non-Traditional CBPR Partnerships: Lessons from an Academic-Community Partnership with Autistic Self-Advocates

  Background: Most community-based participatory research (CBPR) projects involve local communities defined by race, ethnicity, geography, or occupation. Autistic self-advocates, a geographically dispersed ...

  Citation × Citation Citation Abstract Copy Title: Collaboration Strategies in Non-Traditional CBPR Partnerships: Lessons from an Academic-Community Partnership with Autistic Self-Advocates Author: Nicolaidis, Christina, Raymaker, Dora, McDonald, Katherine, Dern, Sebastian, Ashkenazy, Elesia, Boisclair, Cody, Robertson, Scott, Baggs, Amanda Year: 2011 Background: Most community-based participatory research (CBPR) projects involve local communities defined by race, ethnicity, geography, or occupation. Autistic self-advocates, a geographically dispersed community defined by disability, experience issues in research similar to those expressed by more traditional minorities. Objectives: We sought to build an academic–community partnership that uses CBPR to improve the lives of people on the autistic spectrum. Methods: The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) includes representatives from academic, self-advocate, family, and professional communities. We are currently conducting several studies about the health care experiences and well-being of autistic adults. Lessons Learned: We have learned a number of strategies that integrate technology and process to successfully equalize power and accommodate diverse communication and collaboration needs. Conclusions: CBPR can be conducted successfully with autistic self-advocates. Our strategies may be useful to other CBPR partnerships, especially ones that cannot meet in person or that include people with diverse communication needs. Title: Collaboration Strategies in Non-Traditional CBPR Partnerships: Lessons from an Academic-Community Partnership with Autistic Self-Advocates Author: Nicolaidis, Christina, Raymaker, Dora, McDonald, Katherine, Dern, Sebastian, Ashkenazy, Elesia, Boisclair, Cody, Robertson, Scott, Baggs, Amanda Year: 2011 Background: Most community-based participatory research (CBPR) projects involve local communities defined by race, ethnicity, geography, or occupation. Autistic self-advocates, a geographically dispersed community defined by disability, experience issues in research similar to those expressed by more traditional minorities. Objectives: We sought to build an academic–community partnership that uses CBPR to improve the lives of people on the autistic spectrum. Methods: The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) includes representatives from academic, self-advocate, family, and professional communities. We are currently conducting several studies about the health care experiences and well-being of autistic adults. Lessons Learned: We have learned a number of strategies that integrate technology and process to successfully equalize power and accommodate diverse communication and collaboration needs. Conclusions: CBPR can be conducted successfully with autistic self-advocates. Our strategies may be useful to other CBPR partnerships, especially ones that cannot meet in person or that include people with diverse communication needs. Close