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• 1. [Article] The Historical, Political, Social, and Individual Factors That Have Influenced the Development of Aging and Disability Resource Centers and Options Counseling

  This thesis reports on the perspectives and experiences of policymakers, advocates, agency supervisors, and experts in the field of gerontology, about the development of Aging and Disability Resource Centers ...

  Citation × Citation Citation Abstract Copy Title: The Historical, Political, Social, and Individual Factors That Have Influenced the Development of Aging and Disability Resource Centers and Options Counseling Author: Elliott, Sheryl DeJoy Year: 2013 This thesis reports on the perspectives and experiences of policymakers, advocates, agency supervisors, and experts in the field of gerontology, about the development of Aging and Disability Resource Centers (ADRC) programs and Options Counseling (OC). By examining the foundations upon which ADRCs and OC are built, this study sought to inform future research about the effectiveness of existing practice, increase understanding of best practices, and clarify whether these emerging services are accomplishing original goals. ADRCs and OC intend to address long-term care issues and healthcare needs by providing a single entry point to the social service system. ADRCs offer information, assistance, and OC to people of all ages, incomes, and disabilities, and promote long-term care options that honor independence and respect for the needs and preferences of individuals, their families, and caregivers. They are the latest iteration of policymakers' efforts to provide affordable home-and community-based care for older persons and their caregivers. A total of fifteen qualitative interviews were conducted and analyzed using grounded theory methods. Key persons interviewed included experts in the area of aging, aging policy, and aging. Participants were recruited through referrals suggested by Portland State University's (PSU) Institute on Aging (IOA) staff. In addition, several key experts known to the researcher through affiliation with PSU's IOA agreed to be interviewed. Snowball sampling was then used to locate additional key experts. Interview participants were classified as advocates, state decision makers, policy makers, or academicians. Advocates included national and state directors of agencies that promote the development and management of effective services to aging adults. State decision makers included state directors, ADRC directors and supervisors, and program analysts. Policy makers interviewed were national program directors responsible for shaping the future of developing programs to assist older adults. Academicians who participated in the study have been instrumental in developing and researching practices that promote well-being for the aging and the aged. These key experts were selected based on their knowledge and ability to inform the strengths, weakness, and development of ADRCs and Options Counseling. Many have been instrumental in health and aging policy and service development and research, and possess insider knowledge not available to the general public regarding attitudes and interests motivating the actors. Findings indicate that ADRCs and OC are designed to manage within existing social service systems. They can benefit some individuals by providing more options and support in accessing public and private services. It remains to be seen whether they have the capacity to ameliorate some existing system-level problems. Findings highlight program strengths and weaknesses, sustainability issues, and policymakers, state decision makers', and providers' commitment to sustaining ADRCs and OC. Title: The Historical, Political, Social, and Individual Factors That Have Influenced the Development of Aging and Disability Resource Centers and Options Counseling Author: Elliott, Sheryl DeJoy Year: 2013 This thesis reports on the perspectives and experiences of policymakers, advocates, agency supervisors, and experts in the field of gerontology, about the development of Aging and Disability Resource Centers (ADRC) programs and Options Counseling (OC). By examining the foundations upon which ADRCs and OC are built, this study sought to inform future research about the effectiveness of existing practice, increase understanding of best practices, and clarify whether these emerging services are accomplishing original goals. ADRCs and OC intend to address long-term care issues and healthcare needs by providing a single entry point to the social service system. ADRCs offer information, assistance, and OC to people of all ages, incomes, and disabilities, and promote long-term care options that honor independence and respect for the needs and preferences of individuals, their families, and caregivers. They are the latest iteration of policymakers' efforts to provide affordable home-and community-based care for older persons and their caregivers. A total of fifteen qualitative interviews were conducted and analyzed using grounded theory methods. Key persons interviewed included experts in the area of aging, aging policy, and aging. Participants were recruited through referrals suggested by Portland State University's (PSU) Institute on Aging (IOA) staff. In addition, several key experts known to the researcher through affiliation with PSU's IOA agreed to be interviewed. Snowball sampling was then used to locate additional key experts. Interview participants were classified as advocates, state decision makers, policy makers, or academicians. Advocates included national and state directors of agencies that promote the development and management of effective services to aging adults. State decision makers included state directors, ADRC directors and supervisors, and program analysts. Policy makers interviewed were national program directors responsible for shaping the future of developing programs to assist older adults. Academicians who participated in the study have been instrumental in developing and researching practices that promote well-being for the aging and the aged. These key experts were selected based on their knowledge and ability to inform the strengths, weakness, and development of ADRCs and Options Counseling. Many have been instrumental in health and aging policy and service development and research, and possess insider knowledge not available to the general public regarding attitudes and interests motivating the actors. Findings indicate that ADRCs and OC are designed to manage within existing social service systems. They can benefit some individuals by providing more options and support in accessing public and private services. It remains to be seen whether they have the capacity to ameliorate some existing system-level problems. Findings highlight program strengths and weaknesses, sustainability issues, and policymakers, state decision makers', and providers' commitment to sustaining ADRCs and OC. Close

• 2. [Article] Consumer Satisfaction with Aging & Disability Resource Connection of Oregon: Round 4

  The report describes the fourth round of consumer satisfaction surveys that were conducted with people who had been in contact with the Information & Referral/Assistance (I&R/A) Call Center or received ...

  Citation × Citation Citation Abstract Copy Title: Consumer Satisfaction with Aging & Disability Resource Connection of Oregon: Round 4 Author: White, Diana, Elliott, Sheryl DeJoy Year: 2015 The report describes the fourth round of consumer satisfaction surveys that were conducted with people who had been in contact with the Information & Referral/Assistance (I&R/A) Call Center or received Options Counseling (OC) services of Aging and Disabilities Resource Connection (ADRC) of Oregon. Data for this survey were collected in November 2014. This Executive Report summarizes and presents data on overall satisfaction, conclusions, and recommendations for the ADRC program. Title: Consumer Satisfaction with Aging & Disability Resource Connection of Oregon: Round 4 Author: White, Diana, Elliott, Sheryl DeJoy Year: 2015 The report describes the fourth round of consumer satisfaction surveys that were conducted with people who had been in contact with the Information & Referral/Assistance (I&R/A) Call Center or received Options Counseling (OC) services of Aging and Disabilities Resource Connection (ADRC) of Oregon. Data for this survey were collected in November 2014. This Executive Report summarizes and presents data on overall satisfaction, conclusions, and recommendations for the ADRC program. Close

• 3. [Article] Characteristics of Medicaid Clients in Assisted Living, Residential Care, Memory Care, and Adult Foster Homes 2013-2014

  In collaboration with the Aging and People with Disabilities (APD) program of Oregon’s Department of Human Services (DHS), Portland State University’s Institute on Aging generated this report of Medicaid ...

  Citation × Citation Citation Abstract Copy Title: Characteristics of Medicaid Clients in Assisted Living, Residential Care, Memory Care, and Adult Foster Homes 2013-2014 Author: Carder, Paula C., Kohon, Jacklyn Nicole, Elliott, Sheryl DeJoy, West, Maximilian, Zimam, Amanuel, Neal, Margaret B. Year: 2014 In collaboration with the Aging and People with Disabilities (APD) program of Oregon’s Department of Human Services (DHS), Portland State University’s Institute on Aging generated this report of Medicaid clients living in community-based care (CBC) settings in the state of Oregon. The Oregon legislature appropriated funds for DHS to collect information about these community-based care providers which will allow DHS, providers, and the public to better understand characteristics of Medicaid clients living in different CBC settings. This report is based on an analysis of Medicaid data provided by DHS. The study goals were to: describe Medicaid clients’ health-related needs, service use, and demographic characteristics; provide a baseline for future reports. In addition, this information about Medicaid clients can be compared to the recently completed summary of assisted living facilities (ALF), residential care facilities (RCF), memory care communities (MCC), and adult foster homes (AFH) completed by Portland State University’s Institute on Aging. All three CBC reports and a report recently completed by Oregon State University on nursing facilities in Oregon, provide an important overview of community-based and long-term care settings in Oregon that can be used by policymakers, providers, and consumers. Title: Characteristics of Medicaid Clients in Assisted Living, Residential Care, Memory Care, and Adult Foster Homes 2013-2014 Author: Carder, Paula C., Kohon, Jacklyn Nicole, Elliott, Sheryl DeJoy, West, Maximilian, Zimam, Amanuel, Neal, Margaret B. Year: 2014 In collaboration with the Aging and People with Disabilities (APD) program of Oregon’s Department of Human Services (DHS), Portland State University’s Institute on Aging generated this report of Medicaid clients living in community-based care (CBC) settings in the state of Oregon. The Oregon legislature appropriated funds for DHS to collect information about these community-based care providers which will allow DHS, providers, and the public to better understand characteristics of Medicaid clients living in different CBC settings. This report is based on an analysis of Medicaid data provided by DHS. The study goals were to: describe Medicaid clients’ health-related needs, service use, and demographic characteristics; provide a baseline for future reports. In addition, this information about Medicaid clients can be compared to the recently completed summary of assisted living facilities (ALF), residential care facilities (RCF), memory care communities (MCC), and adult foster homes (AFH) completed by Portland State University’s Institute on Aging. All three CBC reports and a report recently completed by Oregon State University on nursing facilities in Oregon, provide an important overview of community-based and long-term care settings in Oregon that can be used by policymakers, providers, and consumers. Close

• 4. [Article] Resident and Home Characteristics Report 2014: Adult Foster Homes

  In collaboration with the Aging and People with Disabilities program of Oregon’s Department of Human Services (DHS), Portland State University’s Institute on Aging conducted this research study of adult ...

  Citation × Citation Citation Abstract Copy Title: Resident and Home Characteristics Report 2014: Adult Foster Homes Author: Carder, Paula C., Elliott, Sheryl DeJoy, Limburg, Aubrey, Kohon, Jacklyn Nicole, Zimam, Amanuel, West, Maximilian, Neal, Margaret B. Year: 2014 In collaboration with the Aging and People with Disabilities program of Oregon’s Department of Human Services (DHS), Portland State University’s Institute on Aging conducted this research study of adult foster homes (AFH) throughout the state of Oregon. The Oregon legislature appropriated funds for DHS to collect information from these community-based care providers that will allow DHS, providers, and the public to better understand resident characteristics and adult foster home services. This report summarizes findings from the first state-wide survey of licensed adult foster homes in Oregon. The survey goals were to: describe resident health-related needs, service use, and demographic characteristics; describe AFH provider characteristics (e.g., number of years as a provider, professional training); describe adult foster homes (e.g., occupancy, monthly charges, staffing); and provide a baseline for future surveys. In addition, this information about AFHs can be compared to the recently completed summary of assisted living, residential care, and memory care facilities completed by Portland State University’s Institute on Aging. Both surveys, along with a report that summarizes characteristics of Medicaid clients based on data provided by DHS and a report recently completed by Oregon State University on nursing facilities in Oregon, provide an important overview of community-based care settings in Oregon that can be used by policymakers, providers, and consumers. Title: Resident and Home Characteristics Report 2014: Adult Foster Homes Author: Carder, Paula C., Elliott, Sheryl DeJoy, Limburg, Aubrey, Kohon, Jacklyn Nicole, Zimam, Amanuel, West, Maximilian, Neal, Margaret B. Year: 2014 In collaboration with the Aging and People with Disabilities program of Oregon’s Department of Human Services (DHS), Portland State University’s Institute on Aging conducted this research study of adult foster homes (AFH) throughout the state of Oregon. The Oregon legislature appropriated funds for DHS to collect information from these community-based care providers that will allow DHS, providers, and the public to better understand resident characteristics and adult foster home services. This report summarizes findings from the first state-wide survey of licensed adult foster homes in Oregon. The survey goals were to: describe resident health-related needs, service use, and demographic characteristics; describe AFH provider characteristics (e.g., number of years as a provider, professional training); describe adult foster homes (e.g., occupancy, monthly charges, staffing); and provide a baseline for future surveys. In addition, this information about AFHs can be compared to the recently completed summary of assisted living, residential care, and memory care facilities completed by Portland State University’s Institute on Aging. Both surveys, along with a report that summarizes characteristics of Medicaid clients based on data provided by DHS and a report recently completed by Oregon State University on nursing facilities in Oregon, provide an important overview of community-based care settings in Oregon that can be used by policymakers, providers, and consumers. Close

• 5. [Article] Oregon Community-Based Care Survey: Assisted Living, Residential Care, and Memory Care

  In Oregon, community-based care (CBC) communities include assisted living (AL), residential care (RC), and memory care (MC) communities. These settings provide residential, personal care, and health-related ...

  Citation × Citation Citation Abstract Copy Title: Oregon Community-Based Care Survey: Assisted Living, Residential Care, and Memory Care Author: Carder, Paula C., Tunalilar, Ozcan, Elliott, Sheryl DeJoy, Dys, Sarah, Neal, Margaret B. Year: 2017 In Oregon, community-based care (CBC) communities include assisted living (AL), residential care (RC), and memory care (MC) communities. These settings provide residential, personal care, and health-related services, primarily to older adults. As the population of Oregonians aged 65 and older is estimated to increase from 16 percent in 2015 to nearly 23 percent in 20501, the availability of CBC settings will continue to be an important source of long-term services and supports. This report provides an in-depth look at Oregon’s CBC settings. Because no central dataset of CBC services, staff, and residents is available, as opposed to nursing facilities, information for this report was collected using a questionnaire that CBC providers (e.g., administrators, directors) were asked to complete. CBC settings provide long-term services and supports to many older Oregonians and their families. These services include daily meals, housekeeping and laundry, assistance with personal care needs, medication administration, monitoring of health conditions, communication with residents’ health care providers, and social and recreational activities. Of the 517 AL, RC, and MC communities licensed as of fall 2016, 60 percent (308) returned a questionnaire. The data described in this report are based upon these 308 communities unless noted otherwise. The goals of the project described in this report included: Describe assisted living, residential care, and memory care community characteristics, including staffing types and levels, policies, and monthly charges and fees Describe current residents’ health and social characteristics Compare current results with prior Oregon surveys and national studies of similar setting types to identify changes and possible trends Compare setting types for differences that might affect access, quality, or costs Title: Oregon Community-Based Care Survey: Assisted Living, Residential Care, and Memory Care Author: Carder, Paula C., Tunalilar, Ozcan, Elliott, Sheryl DeJoy, Dys, Sarah, Neal, Margaret B. Year: 2017 In Oregon, community-based care (CBC) communities include assisted living (AL), residential care (RC), and memory care (MC) communities. These settings provide residential, personal care, and health-related services, primarily to older adults. As the population of Oregonians aged 65 and older is estimated to increase from 16 percent in 2015 to nearly 23 percent in 20501, the availability of CBC settings will continue to be an important source of long-term services and supports. This report provides an in-depth look at Oregon’s CBC settings. Because no central dataset of CBC services, staff, and residents is available, as opposed to nursing facilities, information for this report was collected using a questionnaire that CBC providers (e.g., administrators, directors) were asked to complete. CBC settings provide long-term services and supports to many older Oregonians and their families. These services include daily meals, housekeeping and laundry, assistance with personal care needs, medication administration, monitoring of health conditions, communication with residents’ health care providers, and social and recreational activities. Of the 517 AL, RC, and MC communities licensed as of fall 2016, 60 percent (308) returned a questionnaire. The data described in this report are based upon these 308 communities unless noted otherwise. The goals of the project described in this report included: Describe assisted living, residential care, and memory care community characteristics, including staffing types and levels, policies, and monthly charges and fees Describe current residents’ health and social characteristics Compare current results with prior Oregon surveys and national studies of similar setting types to identify changes and possible trends Compare setting types for differences that might affect access, quality, or costs Close

• 6. [Article] Oregon Community-Based Care Survey: Adult Foster Homes

  Adult foster homes (AFH) offer long-term services and supports to older adults and people with disabilities who wish to remain in the community but need assistance with personal care and health-related ...

  Citation × Citation Citation Abstract Copy Title: Oregon Community-Based Care Survey: Adult Foster Homes Author: Carder, Paula C., Elliott, Sheryl DeJoy, Tunalilar, Ozcan, Dys, Sarah, Neal, Margaret B. Year: 2017 Adult foster homes (AFH) offer long-term services and supports to older adults and people with disabilities who wish to remain in the community but need assistance with personal care and health-related tasks. This report focuses on Oregon AFHs that are licensed to care for individuals aged 65 and older and younger adults with disabilities. Homes may be licensed for one to five residents and must be staffed 24-hours daily to respond to residents’ scheduled and unscheduled needs or requests. This report provides an in-depth look at a sample of Oregon AFHs. Since no central dataset of AFH services, staff, and residents is available, information for this report was collected from mid-January to mid-March 2017 using a questionnaire that AFH owners were asked to complete. At the start of this project, there were 1,740 AFHs in the state. The goals of the project described in this report included: Describe AFH characteristics, including staffing types and levels, policies, and monthly charges and fees Describe current residents’ health and social characteristics Compare current results with prior Oregon surveys and national studies (as available), and identify changes and possible trends Describe characteristics that could affect access, quality, or cost Title: Oregon Community-Based Care Survey: Adult Foster Homes Author: Carder, Paula C., Elliott, Sheryl DeJoy, Tunalilar, Ozcan, Dys, Sarah, Neal, Margaret B. Year: 2017 Adult foster homes (AFH) offer long-term services and supports to older adults and people with disabilities who wish to remain in the community but need assistance with personal care and health-related tasks. This report focuses on Oregon AFHs that are licensed to care for individuals aged 65 and older and younger adults with disabilities. Homes may be licensed for one to five residents and must be staffed 24-hours daily to respond to residents’ scheduled and unscheduled needs or requests. This report provides an in-depth look at a sample of Oregon AFHs. Since no central dataset of AFH services, staff, and residents is available, information for this report was collected from mid-January to mid-March 2017 using a questionnaire that AFH owners were asked to complete. At the start of this project, there were 1,740 AFHs in the state. The goals of the project described in this report included: Describe AFH characteristics, including staffing types and levels, policies, and monthly charges and fees Describe current residents’ health and social characteristics Compare current results with prior Oregon surveys and national studies (as available), and identify changes and possible trends Describe characteristics that could affect access, quality, or cost Close